The CCS CDI Registry: Moving from Early Development toward Full Implementation

Summary

This article provides a status report on the development of the Caribbean Cardiac Society Cardiac Diagnostic and Interventional Registry.

  • Prevention & Screening
  • Interventional Techniques & Devices
  • Cardiology Clinical Trials

Godfrey Aleong, MD, Advanced Cardiovascular Institute, Trinidad and Tobago provided a status report on the development of the Caribbean Cardiac Society Cardiac Diagnostic and Interventional (CCSCDI) Registry.

Cardiac registries can improve clinical outcomes and also be used to examine issues related to the choice and use of cardiac procedures and the comparative effectiveness of competing treatment options [Hannan EL et al. J Am Coll Cardiol 2012].

The goal of the initiative to establish a Caribbean-wide diagnostic interventional registry is to standardize cardiac practices and accumulate regional data. Its objectives are to build a voluntary quality-assurance tool relevant to the Caribbean environment (ie, its diversity and unique character), and to develop a combined database of sufficient size for meaningful research.

Over the past year, 8 countries in the Caribbean with 13 cardiac catheterization laboratories and their associated invasive and interventional cardiologists have been identified for participation in the registry. The initial countries include the Bahamas, Barbados, Belize, Guyana, Jamaica, Martinique, St. Croix, and Trinidad; all 13 cardiac catheterization laboratories will be included in the registry.

A Patient Data Form with 45 variables has been developed in collaboration with interventional cardiologists from the Caribbean. It includes information on patient demographics, risk factors, cardiovascular histories, complications and recommendations, equipment used, and outcomes of cardiac interventions. The form has been sent to interventional cardiologists in the Caribbean for comments.

Three IT providers have been interviewed to develop an online database, and proposals have been submitted to the Caribbean Cardiac Society (CCS) Secretariat for review. A prototype was commissioned and presented at the CCS 2012 meeting, along with preliminary data from January 2011 (Figures 1 and 2).

Figure 1.

CCSCDI Risk Factor Statistics (%).

CABG=coronary artery bypass graft; CAD=coronary artery disease.Reproduced with permission from G. Aleong, MD.
Figure 2.

CCSCDI Data: Antiplatelet Therapy.

CCSCDI=Caribbean Cardiac Society Cardiac Diagnostic and Interventional Registry.Reproduced with permission from G. Aelong, MD.

Further development will require the cooperation of all stakeholders. According to Dr. Aleong, the registry is in its early developmental stages and will be fully established over the next year.

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