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type=\u0022text\/css\u0022 rel=\u0022stylesheet\u0022 href=\u0022\/\/d282kpwvnogo5m.cloudfront.net\/sites\/default\/files\/advagg_css\/css__ce2QY63WIanKyr8eSq7eavr1XQRRmFD6ZSmwpyJi8lM__zXwFqpqmxrZOXXcd_TpBQpjuELbmIP9wBR5UuTDWAO4__YJWWMMdfCJuAFm5cUEp88OsodhO3ZA-2lzRfoBsSlk4.css\u0022 media=\u0022all\u0022 \/\u003E\n\u003Clink rel=\u0027stylesheet\u0027 type=\u0027text\/css\u0027 href=\u0027\/sites\/all\/modules\/contrib\/panels\/plugins\/layouts\/onecol\/onecol.css\u0027 \/\u003E\u003C\/head\u003E\u003Cbody\u003E\u003Cdiv class=\u0022panels-ajax-tab-panel panels-ajax-tab-panel-sageoa-tab-art\u0022\u003E\u003Cdiv class=\u0022panel-display panel-1col clearfix\u0022 \u003E\n  \u003Cdiv class=\u0022panel-panel panel-col\u0022\u003E\n    \u003Cdiv\u003E\u003Cdiv class=\u0022panel-pane pane-highwire-markup\u0022 \u003E\n  \n      \n  \n  \u003Cdiv class=\u0022pane-content\u0022\u003E\n    \u003Cdiv class=\u0022highwire-markup\u0022\u003E\u003Cdiv xmlns=\u0022http:\/\/www.w3.org\/1999\/xhtml\u0022 id=\u0022content-block-markup\u0022 xmlns:xhtml=\u0022http:\/\/www.w3.org\/1999\/xhtml\u0022\u003E\u003Cdiv class=\u0022article fulltext-view \u0022\u003E\u003Cspan class=\u0022highwire-journal-article-marker-start\u0022\u003E\u003C\/span\u003E\u003Cdiv class=\u0022section abstract\u0022 id=\u0022abstract-1\u0022\u003E\u003Ch2\u003ESummary\u003C\/h2\u003E\n            \u003Cp id=\u0022p-1\u0022\u003EHeart failure results in substantial morbidity, mortality, and expense; yet, quality of care varies widely and is frequently inadequate. This article reports on the progress, or lack thereof, in establishing a heart failure registry for the Caribbean region.\u003C\/p\u003E\n         \u003C\/div\u003E\u003Cul class=\u0022kwd-group\u0022\u003E\u003Cli class=\u0022kwd\u0022\u003ECardiology Clinical Trials\u003C\/li\u003E\u003Cli class=\u0022kwd\u0022\u003EHeart Failure\u003C\/li\u003E\u003C\/ul\u003E\u003Cp id=\u0022p-2\u0022\u003EHeart failure (HF) affects over 5.8 million individuals in the United States (US) and over 23 million worldwide [Lloyd-Jones D et al. \u003Cem\u003ECirculation\u003C\/em\u003E 2010; Bui AL et al. \u003Cem\u003ENat Rev Cardiol\u003C\/em\u003E 2011]. It results in substantial morbidity, mortality, and expense; yet, quality of care varies widely and is frequently inadequate. Performance improvement registries have been developed to help identify ways to improve quality of care and outcomes for patients with HF in both inpatient and outpatient settings [Fonarow GC. \u003Cem\u003ECirc J 2011\u003C\/em\u003E]. Martin Didier, MD, Medical Consultant, Tapion Hospital, Castries, St. Lucia, reported on progress, or lack thereof, in establishing a HF registry for the Caribbean region.\u003C\/p\u003E\u003Cp id=\u0022p-3\u0022\u003EThe Caribbean Cardiac Society (CCS) consists of 18 countries, including England, France, Spain, and the Netherlands. The objective of the registry initiative is to provide information on the characteristics of HF and its management in the Caribbean region. However, the effort to date has encountered many challenges, including lack of funds, staff shortage, lack of coordinators, and no coordinating centers.\u003C\/p\u003E\u003Cp id=\u0022p-4\u0022\u003EThe aims of the CCS Survey on HF were to: 1) describe the clinical characteristics of outpatients and inpatients with HF who were followed by representative Caribbean cardiology centers; 2) describe the diagnostics and therapeutics that are undertaken in the evaluation and follow-up of patients with HF; 3) assess the outcomes of patients with HF within a 12-month follow-up period and determine prognostic predictors of their outcomes; 4) evaluate whether disparities in management between countries, if found, affect patient outcomes; and 5) determine the characteristics of patients who require referral if necessary to extraregional facilities.\u003C\/p\u003E\u003Cp id=\u0022p-5\u0022\u003EThe survey was designed to be prospective, international, multicenter, and observational. It was expected to last 1 year with three visits (enrollment, 6 months, and 12 months). Participants were to include patients aged \u0026lt;18 years with HF. Cardiology centers were graded according to capabilities or competencies (\u003Ca id=\u0022xref-table-wrap-1-1\u0022 class=\u0022xref-table\u0022 href=\u0022#T1\u0022\u003ETable 1\u003C\/a\u003E).\u003C\/p\u003E\u003Cdiv id=\u0022T1\u0022 class=\u0022table pos-float\u0022\u003E\u003Cdiv class=\u0022table-inline\u0022\u003E\u003Cdiv class=\u0022callout\u0022\u003E\u003Cspan\u003EView this table:\u003C\/span\u003E\u003Cul class=\u0022callout-links\u0022\u003E\u003Cli class=\u00220 first\u0022\u003E\u003Ca href=\u0022\/\u0022 class=\u0022table-expand-inline\u0022 data-table-url=\u0022\/highwire\/markup\/12567\/expansion?postprocessors=highwire_figures%2Chighwire_math%2Chighwire_inline_linked_media%2Chighwire_embed\u0026amp;table-expand-inline=1\u0022 html=\u00221\u0022 fragment=\u0022#\u0022 external=\u00221\u0022 data-icon-position=\u0022\u0022 data-hide-link-title=\u00220\u0022\u003EView inline\u003C\/a\u003E\u003C\/li\u003E\u003Cli class=\u00221\u0022\u003E\u003Ca href=\u0022\/highwire\/markup\/12567\/expansion?width=1000\u0026amp;height=500\u0026amp;iframe=true\u0026amp;postprocessors=highwire_figures%2Chighwire_math%2Chighwire_inline_linked_media\u0022 class=\u0022colorbox colorbox-load table-expand-popup\u0022 rel=\u0022gallery-fragment-tables\u0022 data-icon-position=\u0022\u0022 data-hide-link-title=\u00220\u0022\u003EView popup\u003C\/a\u003E\u003C\/li\u003E\u003Cli class=\u00222 last\u0022\u003E\u003Ca href=\u0022\/highwire\/powerpoint\/12567\u0022 class=\u0022highwire-figure-link highwire-figure-link-ppt\u0022 data-icon-position=\u0022\u0022 data-hide-link-title=\u00220\u0022\u003EDownload powerpoint\u003C\/a\u003E\u003C\/li\u003E\u003C\/ul\u003E\u003C\/div\u003E\u003C\/div\u003E\u003Cdiv class=\u0022table-caption\u0022\u003E\u003Cspan class=\u0022table-label\u0022\u003ETable 1.\u003C\/span\u003E \n            \u003Cp id=\u0022p-6\u0022 class=\u0022first-child\u0022\u003ECCS CV Center Classifications.\u003C\/p\u003E\n         \u003Cdiv class=\u0022sb-div caption-clear\u0022\u003E\u003C\/div\u003E\u003C\/div\u003E\u003C\/div\u003E\u003Cp id=\u0022p-7\u0022\u003EThe challenges that are mentioned above have prevented the study from taking place. However, opportunities exist to continue the effort. These include collaboration with American colleagues and those from the European Society of Cardiology; memoranda of understanding with regional or international universities and public health programs; partnerships with industry; and European funding through French colleagues.\u003C\/p\u003E\u003Cp id=\u0022p-8\u0022\u003EAs Co-Chair of the CCS Cardiac Heart Failure Registry Steering Committee, Dr. Didier recommended that the Committee appoint regional coordinators (English, Spanish, and Dutch); convene a face-to-face registry CCS meeting; involve the Organisation of Eastern Caribbean States (OECS); access funding; and continue efforts through 2013.\u003C\/p\u003E\u003Cp id=\u0022p-9\u0022\u003EFour registries in the US collect data on clinical characteristics, admission, hospital and\/or outpatient care, discharge, and outcomes. Those who are part of the registry make frequent use of web-based tools that provide real-time performance feedback, national data, and other benchmarked quality measures [Fonarow GC. \u003Cem\u003ECirc J 2011\u003C\/em\u003E].\u003C\/p\u003E\u003Cp id=\u0022p-10\u0022\u003EParticipation in performance improvement registries is associated with substantial improvements in the use of guideline-recommended therapies for HF in both inpatient and outpatient settings. Conformity with HF quality measures also improves treatment and reduces or eliminates disparities in care. Registries have also been linked to improvements in clinical outcomes [Fonarow GC. \u003Cem\u003ECirc J 2011\u003C\/em\u003E].\u003C\/p\u003E\u003Cul class=\u0022copyright-statement\u0022\u003E\u003Cli class=\u0022fn\u0022 id=\u0022copyright-statement-1\u0022\u003E\u00a9 2011 MD Conference Express\u003C\/li\u003E\u003C\/ul\u003E\u003Cspan class=\u0022highwire-journal-article-marker-end\u0022\u003E\u003C\/span\u003E\u003C\/div\u003E\u003Cspan id=\u0022related-urls\u0022\u003E\u003C\/span\u003E\u003C\/div\u003E\u003Ca href=\u0022http:\/\/mdc.sagepub.com\/content\/11\/9\/15.abstract\u0022 class=\u0022hw-link hw-link-article-abstract\u0022 data-icon-position=\u0022\u0022 data-hide-link-title=\u00220\u0022\u003EView Summary\u003C\/a\u003E\u003C\/div\u003E  \u003C\/div\u003E\n\n  \n  \u003C\/div\u003E\n\u003C\/div\u003E\n  \u003C\/div\u003E\n\u003C\/div\u003E\n\u003C\/div\u003E\u003Cscript type=\u0022text\/javascript\u0022 src=\u0022http:\/\/mdc.sagepub.com\/sites\/all\/modules\/highwire\/highwire\/plugins\/highwire_markup_process\/js\/highwire_openurl.js?nzmzxe\u0022\u003E\u003C\/script\u003E\n\u003Cscript type=\u0022text\/javascript\u0022 src=\u0022http:\/\/mdc.sagepub.com\/sites\/all\/modules\/highwire\/highwire\/plugins\/highwire_markup_process\/js\/highwire_tables.js?nzmzxe\u0022\u003E\u003C\/script\u003E\n\u003C\/body\u003E\u003C\/html\u003E"}